Twin Cities Endo Support Group - anyone welcome (regardless of location)
20 Members
Created by Amy Cullen

Twin Cities Endo Support Group - anyone welcome (regardless of location)

Our Endometriosis Support Group began Tuesday, April 18th, 2006. We meet at the Edina Community Lutheran Church once a month.  This group is just an opportunity to extend our group to online.

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  • Amy

    I don't know why, but I can't update the description to include a link to our site.  :(  Every time I hit save, it disappears.

    5 months ago

  • Energizer

    Hey there isn't a link to our website on here. What does everyone think about having that listed on here? I think we should have one included in the name of our community or as an article or blog or something. Somewhere permanent. I was able to use your link below Amy but what does everyone think about having a link to our website on here?

    I've connected with a girl having my InterStim thing done. She lives in St Cloud. I wanted to locate the date and time for our meeting in July so I could invite her to our next meeting, but it isn't listed. :( I think I'll email Peggy and/or Pam.

    6 months ago

  • Amy

    For anyone looking for local resources to help with endo I recommend this page on the TC Support Group site: http://www.endosupport.com/localresources.html

    9 months ago

  • Talina

    Are there any Endo specialist located in the twin cities?

    9 months ago

  • Talina

    Hello my name is Talina and I am stage 1 and I am having such a hard time expressing how serious my autoimmune diesease is...help!!

    9 months ago

  • Endopeg

    Hey Danielle,

    Thank you and I wish the best for you in your search. Good luck!

    12 months ago

  • Energizer

    Hey ladies. Pam and Peggy, thanks for your direction. I am happy to report I located a Urogynecologist in the Twin Cities. I was able to get in this month on the 25th. I will report back on the doctor and get some business cards if I'm happy with the results. I can share them at the next Support Group meeting.

    A Urogynecologist is a Gynecologist and Urologist in one. I researched and found this Doctor on the "Best Doctors for Women in MN" list. I was very proud that my GI Dr and Urologist Dr are both on this list. I know that Dr Haislet was on this list this year or the year prior? Anyway, here's a link to the best dr's in MN. May it help you and your loved ones find good care: http://www.minnesotamonthly.com/media/Minnesota-Monthly/May-2007/Best-Doctors-for-Women-2007/

    12 months ago

  • Amy

    YAY!  :)  Glad you guys ike it.  Hopefully we can use this as a place to vent, a place to get advice, a place to get support and a place to make friends who "know what we're going through".

    12 months ago

  • Energizer

    This site is great. Thank you for posting it on the Twin Cities Support Group webpage. I'll share discussions on Facebook Endo pages but I don't really want anyone to see it. I feel totally safe here to say whatever I want, and not be worried that some guy I might date, might see it. THANK YOU.

    12 months ago

  • Pam

    Amy this is AWESOME. Thanks for being such a Web goddess. We love you!

    Pam

    12 months ago