End to Endo -- Genetic Endometriosis Research Study
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Created by Juneau Biosciences

End to Endo -- Genetic Endometriosis Research Study

This is a community for participants, supporters, and all those who are interested in the genetic research study on endometriosis being conducted by Juneau Biosciences.

This research compares the DNA of women with endometriosis against the DNA of women without endometriosis. The common segments of DNA (or genes) that women with endometriosis have provide valuable information that could be used to develop a genetic test to diagnose endometriosis. The advantage of such a test is that a woman would not have to be in pain for years before doctors even think to look for endometriosis, and then she would not have to undergo surgery to confirm that diagnosis. Instead, women would be able to have their DNA (taken from a saliva sample) tested for the genes that cause endometriosis, and she could do this before she showed any symptoms of the disease. Once her diagnosis is known, she could consult her doctor to make wise heath care decisions to manage her endometriosis.

Currently, participants are still being recruited to volunteer for this study. If your endometriosis has been surgically diagnosed, you are eligible to participate in this important research! Even if you have had a hysterectomy or gone through menopause, your DNA will still reflect that you carry the genes for endometriosis.

To learn more about this research, visit www.endtoendo.com.

To learn more about Juneau Biosciences, visit www.juneaubiosciences.com.

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Results 1 - 5

  • Sandy

    I sent my kit off today! The spitting however was not normally something i would do! but Im gald that I did!

    3 months ago

  • tracieds

    Got my kit but haven't done it yet

    4 months ago

  • Juneau

    Haha -- spitting into the tube IS less than ladylike. Definitely don't recommend doing it while anyone else is around! It is nice that we can have people participate in medical research without ever leaving their home (except to mail the kit back, of course); no risky drug trials or time-consuming clinic visits.

    11 months ago

  • Melissa

    my spit kit is getting mailed to me tomorrow and im not looking forward to that at all...i'd rather give them blood lol....im so sooo pumped to be participating in this study. i hope it does some good.

    11 months ago

  • Geneva

    Got my "spit kit" in the mail today.  Should have it mailed off tomorrow.  Spitting into that tube was one of the most gross things I have ever done. 

    14 months ago