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share stories, remedies and anything that might help you, and or other patients through the pain.
Adhesions can be a serious complication of endometriosis, not only from surgery, but the disease itself.
This community exists to discuss and share information about the special condition closely related to endometriosis - adhesions. Do you have extensive adhesions? Have you been told by caring family and friends or other persons that the surgeries to help your endo are actually the cause of your adhesions? This may be true, but not the full story. Adhesions form along with the disease whether or not you have surgery! The adhesions are scarring - the result of tissue-damage of any kind, including surgery, but also the disease process of endometriosis itself- which damages the tissue. Why is this important to note? Because many young women are rightly concerned about the possibility of scarring, so they are choosing to delay surgery in an attempt to prevent adhesions, unaware that endometriosis itself also causes adhesions. I hope this will be a place where we can enlighten each other. Many of us who will need this community may be far down the path, and therefore need some of the tools I plan to post, such as sample letters of disability, etc...created by the Int'l Adhesion Society.
Support for the married couples. Sometimes during this difficult time we have a hard time dealing with our spouse. Share your experience on you and your spouse cope. Is your mate understanding and supportive through this time? Please tell experiences and give suggestions for those whose mate has a hard time figuring out whats going on, on ways we can ease up tension and make them understand whats going on.
To offer a group or community for women as myself who struggle with the obsticles of having Endometriosis and Bipolar disorder. We have limited options and I hope this will build knowledge for one another and offer understanding!
The first step to finding a cure is raising awareness. I know that many of us have went undiagnosed for a long period of time do to lack of knowledge of this disease. This is a community for everyone on the board to share a event in your area or world wide related to Endometriosis. We have the month of March dedicated to this disease and many events are around that time however if you read article or hear of a Endo related event please share. I will keep the community updated with as much information as I can find. Thanks
The Seattle Endo Group typically meets sometime during the 3rd week of each month. We have a dynamic group of women who offer support, insight, and years of experience to the monthly meetings. We are inclusive meaning endo sufferers and their support system (family member, spouse, significant other) is invited to attend. Visit our website www.seattleendo.org for more local information.
The 4th of July is around the corner, which normally means all sorts of fun: BBQ's!! Fireworks!! Parades!! Friends & Family!! All topped with a great appreciation for the U.S.A.!With this fun comes some great photos - so go ahead and share your good times with the community!To submit a photo, first become a member of the 4th of July Fun! Community:Once you're a member, you're also set to start submitting photos! But be sure and read the below submission guidelines. Five Simple Rules (Submission Guidelines)1. No inappropriateness.2. You can submit up to five (5) photos per contest.3. You, a family member, or a friend must have taken the photo (no scouring the web for cool photos)!4. You must fully own rights to the photo (again, no scouring the web for cool photos).5. Your photo must fit the contest theme (above).If you have any questions please post them below in the comments section.Have fun! We can't wait to see your entries.
For all of those women and their families who have no children but had a hyst. If you need someone to talk to, you came to the right place.
CONTEST ENDED APRIL 24TH. New Contest: Top 10 Things Easier to Deal With Than Endo! Welcome to the new WeAreEndo.org contest, Now – April 24th! What's easier to deal with than Endo? Oh, you know...pulling your toe nails out with pliers...dry shaving your entire body with a sharp razor blade...you get the point. Now it's your turn! To enter, leave your Top 10 list as a comment below. Be creative, and have fun!
I wanted to make a group dedicated to those of us who might have thyroid problems or have been diagnosed with it. I myself haven't been diganosed yet but I have a lot of the symptoms of hypothyroidism. This is a place to come for advice and help on dealing with this or if you are new to the problems and just want to know if you have the symptoms or not and what exactly the symptoms are. http://thyroid.about.com/cs/basics_starthere/a/symptoms.htm
This is a community for participants, supporters, and all those who are interested in the genetic research study on endometriosis being conducted by Juneau Biosciences. This research compares the DNA of women with endometriosis against the DNA of women without endometriosis. The common segments of DNA (or genes) that women with endometriosis have provide valuable information that could be used to develop a genetic test to diagnose endometriosis. The advantage of such a test is that a woman would not have to be in pain for years before doctors even think to look for endometriosis, and then she would not have to undergo surgery to confirm that diagnosis. Instead, women would be able to have their DNA (taken from a saliva sample) tested for the genes that cause endometriosis, and she could do this before she showed any symptoms of the disease. Once her diagnosis is known, she could consult her doctor to make wise heath care decisions to manage her endometriosis. Currently, participants are still being recruited to volunteer for this study. If your endometriosis has been surgically diagnosed, you are eligible to participate in this important research! Even if you have had a hysterectomy or gone through menopause, your DNA will still reflect that you carry the genes for endometriosis. To learn more about this research, visit www.endtoendo.com. To learn more about Juneau Biosciences, visit www.juneaubiosciences.com.
A Place to ask questions and learn about excision surgery and why it is different from traditional surgery for endo. Also a place to discuss doctors for this surgery.
Many doctors don't believe in endo in teens. But even I know that is not true. Many teens have problems by endo but do not know the main cause is endo. This is a place for people to understand endo in teens. This is a community to help spread the word of endo. And to let people know that even young teens can have endo. This community is not just for teens, its for those who have endo, and want to spread the word.Remember to best way to spread the word is to teach the teens about endo.
This community is for woman with endo who also suffer from irritable bowel syndrome. As awkward as this subject can be sometimes, sharing our personal experiences and stories will help dramatically in how we deal with ibs in our day to day lives.
I am creating this community in hopes that woman in canada can find eachother and start support groups in each province. Unfortunetly our healthcare system is a little different and we dont have some of the treatment options available to us that woman in the US have. Anyone is welcome to join no matter where you are from. If it wasnt for a friend in the states I would never have found the treatment I have now. This group is not just about treatment. its about anything you would like to discuss. So please dont hesitate to start a discussion!!
Endometriosis can cause infertility in many women, but with proactive treatment, the possibility of pregnancy is increased. Discuss treatment options with your doctor to decide what would be the best course to take to increase your chances of pregnancy. Use this community to share your knowledge, experience and tips about your dealings with Endo and Pregnancy.
Our Endometriosis Support Group began Tuesday, April 18th, 2006. We meet at the Edina Community Lutheran Church once a month. This group is just an opportunity to extend our group to online.